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2012

Published Articles

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  • Koh M. Chronic musculoskeletal pain in a pediatric patient: case report from the United Kingdom, with commentaries from Spain and Israel. Journal of pain & palliative care pharmacotherapy. 2012 Dec 5;26(4):391-3. DOI: 10.3109/15360288.2012.734910. Available from:
  • Hain R, Heckford E, McCulloch R. Paediatric palliative medicine in the UK: past, present, future. Archives of disease in childhood. 2012 Apr 1;97(4):381-4. DOI: 10.1136/archdischild-2011-300432. Available from:
  • Craig F, Boden C, Samuel J. Schooling of children with a life-limiting or life-threatening illness. European Journal of Palliative Care. 2012 Jan 1;19(3):131-5.
  • Tietze AL, Blankenburg M, Hechler T, Michel E, Koh M, Schlüter B, Zernikow B. Sleep disturbances in children with multiple disabilities. Sleep medicine reviews. 2012 Apr 1;16(2):117-27. DOI: 10.1016/j.smrv.2011.03.006. ÌýAvailable from:

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Book Chapters

  • Bluebond-Langner M, Nordquest Schwallie M and DeCicco A. "Children's Views of Death." In Oxford Textbook of Palliative Care for Children. Ann Goldman, Stephen Lieben & Richard Hains, editors. Oxford University Press 2012.
  • Craig F and Bayliss J. "Palliative Care for Children." In Textbook of Palliative Medicine, Hodder Education 2012.
  • Carter B and Craig F. "Intensive-Care Units." In Oxford Textbook of Palliative Care for Children. Ann Goldman, Stephen Lieben, & Richard Hains, editors. Oxford University Press 2012.
  • Craig F, Koh M andÌýWolfe J. "Palliative Care for Children with Advanced Cancer." In 'Cancer for Children: Clinical Management' 6th Edition. Ed M.C.G. Stevens, H.N. Caron and A. Biondi. Oxford University Press 2012.
  • Craig F and Lidstone V. "Adolescents and Young Adults." In Oxford Textbook of Palliative Care for Children. Ann Goldman, Stephen Lieben, & Richard Hains, editors. Oxford University Press 2012.
  • Fraser L, Aldridge J, Manning S, O'Leary S, Miller M, McCulloch R and Childs A.M. "Hospice Provision and Usage amongst Young People with Neuromuscular Disease in the United Kingdom." European Journal of Paediatric Neurology 15 (2012) 326-330.
  • Kelly P, Kelly D. "Childhood Cancer-Parenting Work for British Bangladeshi Families During Treatment: An Ethnographic Study." Int J Nurs Stud. 2012 Dec 3. pii: S0020-7489(12)00402-6. doi: 10.1016/j.ijnurstu.2012.11.004. [Epub ahead of print]
  • Koh M, Rajapakse D and Craig F. "Paediatric Pain in MIMS Handbook of Pain Management, 6th Edition 2012. Editor Hannah Cottle.
  • McCulloch R. "Pharmacological Approaches to Pain. 3: Adjuvants for Neuropathic and Bone Pain." In Oxford Textbook of Palliative Care for Children. Ann Goldman, Stephen Lieben, & Richard Hains, editors. Oxford University Press 2012.
  • Muriel A.C, McCulloch R and Hammel J.F. "Depression, Anxiety and Delirium." In Oxford Textbook of Palliative Care for Children. Ann Goldman, Stephen Lieben, & Richard Hains, editors. Oxford University Press 2012.
  • Patel P, Koh M, Carr L and McHugh K. "Diagnostic Radiology in Paediatric Palliative Care." Journal of Pediatric Radiology accepted for publication 2012.
  • Rajapakse D and Comac M. "Symptoms in Life-Threatening Illness: Overview and Assessment." In Oxford Textbook of Palliative Care for Children. Ann Goldman, Stephen Lieben, & Richard Hains, editors. Oxford University Press 2012.
  • Singh S, Aindow A "The Association of Paediatric Palliative Medicine Master Formulary 2012". Contributions from Anderson A-K, Brook L, Craig F, Hain R, Harrop E, Lapwood S, Lidstone V and McCulloch R.

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Published Abstracts / Poster Presentations

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  • Boggs T, Rajapakse D, Kelly P, Hollowell DR, Howard R, Craig F, Bluebond-Langner M. Ìý"Developing Patient Controlled Analgesia (PCA) in the Home: Managing Pain In Children And Young People (CYP) with Life-Limiting and Life-Threatening Conditions." Oral presentation at Marie Curie Research Conference London, March 2012. Published in BMJ Supportive and Palliative Care June 2012; on line supplement.
  • Kelly P, Mendoza P, Craig F, Hollowell DR, Twamley K, Bluebond-Langner M. Ìý"Let's Wait and See What Develops: Access to Palliative Care Services for Children with Life-Limiting Conditions and Life-Threatening Illness in the NICU-PICU." ÌýPublished in Journal of Palliative Care 28(3): 194-194 2012
  • Kelly P, Mendoza P, Craig F, Rizpah Hollowell D, Twamley K and Bluebond-Langner M. "Let's Wait and See What Develops: Access to Palliative Care Services for Children with Life-Limiting Conditions and Life-Threatening Illness in the NICU-PICU." Oral presentation at 19th International Congress on Palliative Care, Montréal, Canada, Oct 2012. Journal of Palliative Care 28:3 Autumn 2012 Supplement.
  • Kelly P, ÌýRajapakse D, Boggs T, Garbash M, Rizpah Hollowell D, Howard R, Bluebond- Langner M "PCA in the Home: A case Based Review Highlighting Issues of Meaning and Distributive Justice for CYP with LLC and LTI". Abstract published at Cardiff Paediatric Palliative Care Conference, 2012
  • Kelly P, Twamley K, Moss R, Mancini A, Koh M and Bluebond-Langner M. Ìý"It's Not Just About Death: Changing Attitudes and Knowledge of Palliative Care in Neonatal Units." ÌýBMJ Supportive and Palliative Care 2012; 2 (Supp 1):A20-21.
  • Laddie J, Craig F and Brierley J. "Withdrawal of Ventilator Support outside the Intensive Care Unit." Oral Presentation at RCPCH Annual Conference, Glasgow, Scotland, May 2012.
  • Llewellyn H, Jones L, Kelly P, Craig F, O'Gorman B and Bluebond-Langner M. "They're Just Beginning to Think: Who am I? Health Professionals on Ill Children's Spirituality." ÌýBMJ Supportive and Palliative Care 2012; 2 (Supp 1):A22.
  • Twamley K, Kelly P, Craig F, Hollowell Rizpah D, Mendoza P and Bluebond-Langner M. "Palliative Care Equals End-of-Life Care: Barriers to Referral in a Paediatric Tertiary Care Centre." BMJ Supportive and Palliative Care 2012; 2 (Supp 1):A20.


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